OK, I WILL GET TO JR JOHN DEERE AND POOL WARS BUT FIRST.....
It has been a rather different week all in all. One of my principal motives in this blog, along with honoring the memory of my father, is to write about Alzheimer's. How it effected him, our family, people he worked with, friends and naturally, me! Hopefully in a good selfish manner.
Several situations came up over the past week, which my convoluted brain relates to my concerns regarding Alzheimer's. The first Life of Susan event was when I went to fill a gas can for the lawn mower and a bit of gas into my vehicle. I gave the clerk $I5 and proceeded outside where I put $5 into the gas can. Then when inserting the nozzle into the gas tank.......oh, that would be when I realized that the nozzle didn't fit into the hole. Due to the fact that I had punched the diesel fuel selection. So now I had $5 of diesel fuel in the gas can and had to go back in to straighten out getting the remaining $10 converted to gasoline/unleaded. I have never done this before. It would never occur to me that I wouldn't have noticed I had punched the wrong pump button. I had no point of reference to process just why I'd done it and more importantly hadn't realized the mistake while I filling the gas can, diesel is a different in color, after all.
That would have been disturbing enough, but last Wednesday another even more unexplainable event. My health care is all under the umbrella of the Veteran's Administration-a tale left for other posts. The previous week I had my annual Mammogram, contracted out to a local health care system. Wednesday afternoon I got a phone call informing me due to a 'change from the previous year' they would need to do further scans on my left side and an ultra sound. Whatever. Due to experience, although informed by the caller that my initial appointment letter gave authorization for any additional tests, I knew better than to take a chance. So I called the Lebanon VA Hospital to inform and request a decision and official approval.
Having been in the military and with life in the US in general, reciting my SSN is as automatic as breathing. It just rattles out requiring no brain wave activity what so ever. If asked to write it down a bit of thought might be required but overcome quickly by simply reciting it out loud, as I wrote, would fix that. So when asked I babbled out XXX-XX-XXXX. The nurse replied with a "no that's not it." ????? I then said, "well wait, let me empty my mind {won't take long} and I'll provide my SSN. Same result. I was flummoxed. I began to change the order or digits in the first 3 numbers as I thought the rest was correct. Nothing. I apologized and explained I would grab something with the SSN on it. I emptied the shredding can as tons of VA stuff awaited shredding and it always has my SSN. Nothing. The beginnings of a little 'internal' panic began but making a joke, said I had to go upstairs and get one of my military files, certainly my SSN would be on ALL of those documents. The first military folder I grabbed and opened.... was my Father's service record. Then I grabbed a file of my medical bills as surely my SSN was on some of them. Nothing. Although verbally I'm was still the master of glib on the phone, my search was becoming frantic as I grabbed another file. Relief, it was documents from my time in service and the first document was my DD214/Discharge Papers from my commissioning, discharged from Officer's Candidate School as an E-5 in order to be commissioned the next day as an Ensign. I gave her the correct SSN, we joked around, finished the call and I hung up.
It may seem odd that these two incidents brings me to thinking about Alzheimer's.
But the unique lapse of recall and inattention over the gasoline was troubling. Do the incidents mean Alzheimer's has invaded my brain, hardly. But I do
have an internal struggle dealing with all the nuances of Alzheimer's. Because the reactions to my questions has resulted in what it seems a disorganized 'front' of the REAL ANSWERS given by the Medical Profession. OK, what disorganized front? Declaimer: any of the assumptions I write of would be gratefully corrected if anyone desires to do so.
I'm not at all knowledgeable about disease, treatments, diagnosis, cause or anything else regarding medical matters. But in my experience dealing with Alzheimer's I can't seem to get a definitive answer on ANYTHING. Let's start with, did my Dad have Alzheimer's. Hm. There is no definitive diagnosis for the disease of Alzheimer's, which I have frequently been told by medical personnel. The test result report from the Neurologist, which resulted in my Father losing his license, never once used the word ALZHEIMER'S. Lots of 'decreasing cognitive ability' said numerous times and ways in the report, but the word ALZHEIMER'S? Never. The doctor would never commit to "Your Father is suffering with Alzheimer's". So every time I see or hear that X or Y died from or is with suffering from Alzheimer's I'm baffled. How do they know the person has Alzheimer's? Haven't I been repeatedly informed it can't be positively diagnosed.
Then the matter of genetics being a factor in the disease. I'm told from Alzheimer sites and reports I've read there is no 'proven' genetic connection. Which brings me to question genetic relevance to any other disease, such as Coronary or Cancer. But, they still ask all those questions on all those forms at any medical appointment. "Has anyone in your family had----------." Is Cancer hereditary? My understanding of cancer or heart issues is they ask the question, not because we inherit the actual disease. But rather the genetics that may have caused X to have developed cancer make it more likely that X Jr. may also develop cancer. I am baffled that if that is the approach for other diseases that attack our bodies cell structures, why wouldn't that same theory apply to Alzheimer's. But, I have yet to see if 'anyone in your family has Alzheimer's' question on any of those repetitive endless medical forms.
I often dumb into or onto, as in simply found myself dialing in a radio or TV channel which is discussing Alzheimer's, and heard it said that 'if a parent has Alzheimer's {How do they know if they can't diagnosis it???} That a child has a 50/50 chance they may also develop the disease. Not being one to pass up an opportunity to score-another trait inherited from my Father-when the non diagnosis of my Father was presented to us on Dec 10, 2008 I emailed my brother. There are only 2 of so that made the 50/50 idea perfect. I told him that since our paternal Grandma seemed to suffer from dementia aka Alzheimer's and Dad was enduring a deja vu of what we saw her go through-odds were one of us would be next. And I was betting it was HIM. He didn't seem to think that was humorous but I did.
In reality though, in my pragmatic view of life---it will be me. No I'm not a pessimist. I'm a PRAGMATIST. So my approach is since a glass may have a hole in it, half full or half empty is irrelevant. Does that mean I'll die of thirst? Not at all. What it means is that if I want a drink of water from the glass I should be prepared to fix a hole should it occur. As a pragmatist it benefits me to always prepare for the worst case scenario if I am to overcome an obstacle. Alzheimer's potential for a pragmatist means if I have to deal with the disease its best to know it may visit my body. Not how to defeat this disease but rather how to prepare myself to the end that caring for myself may not be an option.
I began to look at possibilities to determine if Alzheimer's may genetically linked. That the same genetic makeup which caused my grandmother and father to develop the disease may be present in my cell structure. The results of those few inquiries has been dismal. There is a simple blood test to identify the 'factor' which may herald a higher risk of developing Alzheimer's. But when asking my Doctor at the VA about it the response wasn't regarding the possibility of having the test. The reaction was 'Why do you want to know that, What could you do about it anyway." More a assessment of my sanity than my interest in my health.
The incidents really aren't earth shattering and could easily happen to anyone. But they happened to me. Disconcerting.